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HIV/AIDS remains one of the most serious infectious diseases globally. With advancements in medical treatment, living with HIV has become manageable, allowing individuals to lead lives comparable to others as long as they adhere to their medication regimen. However, deeply rooted discrimination and prejudice persist, intersecting with issues of gender, sexuality, illness, and disability. What does it mean to "live with HIV" in Japan today?
This book delves deeply into the lives of people living with HIV, focusing on their life histories. The author engaged with over 100 HIV-positive individuals, primarily gay men, conducted 22 life history interviews, and analyzed personal essays and archival materials. It uncovers collaborative practices by individuals living with HIV and their supporters, shedding light on their resilience and ability to inclusively engage with their surroundings.
Through sociological theories such as queer theory and critical theory, the book highlights how individuals develop resilience amidst hardship and explores how their strength connects with society and fosters new social constructs. It is a radical study of life history that seeks to collaboratively uncover the meaning of lived experiences, nurture intimacy and community, and develop "theories for living."
Table of Contents Preface: Sexuality and Illness / Fieldwork on Health
1.About HIV/AIDS – The Purpose of This Book 2.Sociological Imagination Surrounding HIV – Why Focus on the Lives of HIV-Positive Individuals? 3.What It Means to Be HIV-Positive – Entering the Field 4.Autoethnography on HIV – Before Diagnosis 5.Everyday Life as Fieldwork 6.The Questions and Significance of This Book – What Does It Mean to Live with HIV?
Chapter 1: Sociological Research on HIV
The History of HIV/AIDS as a Social Disease
The Genealogy of Research on People Living with HIV
Positioning This Book: Life History Research on Living with HIV
Goals and Significance: Constructing Society Through Insights from Life Histories
Research Methods and Overview
Structure of This Book
Chapter 2: The Individual as a Field: Reflexive Turns in Life History Research
Life History Research and Critical Theory
Narratives of Illness and Wounded Storytellers
From Lay Experts to Active Participation: The GIPA Principle
Living with HIV: Woundedness, Vulnerability, and Resilience
Summary: Survival and Resilience Among People Living with HIV
Chapter 3: AIDS Activism from the Perspective of Those Affected
Living Politics
Grassroots Activism in the Gay Magazine *G-men*
Health Literacy Practices in the *SHIP Newsletter*
Changes and Current Challenges in Peer Support
Local Care Networks
Chapter 4: Sociology of Stigma and Resilience
Conceptualizing Stigma Related to HIV
Layered Stigmas and Social Exclusion
Focusing on Resilience
Strategies Against Social Exclusion: Life Politics and Living Politics
Chapter 5: Spaces of Chaos and Relationships
Embracing Chaos as Part of Life History
Weaving Intimacy and Community: The Art of Love
Summary: The Continuity of Life Histories
Chapter 6: Towards Radical Life History Research
Towards Theories for Living
Advancing Radical Life History Research
Respecting the Chaos of Unheard Voices
What Does It Mean to Live with HIV?
Limitations and Future Prospects
Conclusion
Summary: Contributions and Significance of This Book
Afterword
About the Author
**Gaku Oshima**
Assistant Professor at Meiji University’s School of Information and Communication. Specializes in sociology, life history/oral history studies, and gender/sexuality studies.
【Author】Take Oshima
【Release Date】2023/11/29
【Publisher】Seikyusha
【Format】A5 size
【Pages】340 pages
【Price】3,400 JPY + tax
【Language】Japanese
【ISBN】978-4787235305
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